Since MS is a disease of the brain and spinal cord, these tissues are of most use to research. Changes in the optic nerve, cerebrospinal fluid (CSF), and blood vessels are also observed in MS, and therefore these and other tissues/fluids may also provide useful information for studying the causes of MS. Donors can specify on the Consent Form which specific tissues and/or fluids they wish to donate, although the current donation protocol in most states only includes the brain and spinal cord.
By signing the informed consent form to become a Brain Donor, you grant permission for a post‐mortem examination of your brain (and spinal cord) to be conducted in accordance with national laws and regulations. These tissues are dissected and stored for the purpose of distribution to approved researchers. You also give permission for the MS Research Australia Brain Bank to access your medical records so that the brain material can be correlated your clinical history of symptoms and drug therapy for effective research. All your details will be kept private and confidential.